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orphananesthesia [free] -- [free] -- a project of the german society of anesthesiology and intensive care medicine dgai [free] -- [free] -- log-in menu home close home the project orphananesthesia faq make a donation rare diseases published guidelines guidelines published in a&i in progress still to do the team contributers members authors links societies patient organisations other projects patient safety card app home close home the project rare diseases the team authors links patient safety card app [free] -- [free] -- a project of the german society of anesthesiology and intensive care medicine flash new guidelines december 2017 and happy holidays! 12.12.2017 published on 12 december 2017 created on 12 december 2017 parent category: homepage email -- there are some new anaesthesia guidelines available for the following rare diseases: de barsy syndrome niemann pick type c behcet’s disease congenital diaphragmatic hernia kartagener syndrome gaucher syndrome systemic onset juvenile idiopathic arthritis mcardle disease the orphananesthesia team would like to wish everyone happy holidays and a successful new year. moreover, we want to thank everyone involved in the project orphananesthesia for their kind support. new anaesthesia guidelines available online - august 2017 30.08.2017 published on 30 august 2017 created on 30 august 2017 parent category: homepage email -- new anaesthesia guidelines have been published online for the following rare diseases: mccune albright syndrome klippel-trénaunay syndrome cerebrotendinous xanthomatosis erdheim-chester disease campomelic dysplasia larsen syndrome huntingtons' disease trisomy 18 biliary artresia new anaesthesia guidelines available 28.03.2017 published on 28 march 2017 created on 28 march 2017 parent category: homepage email -- there is a bunch of new anaesthesia guidelines available. the latest ones include: miller-dieker syndrome bullous pemphigoid stress cardiomyophathy deletion 9p syndrome stickler syndrome inclusion body myositis thanks to all the useful work of the authors and reviewers our project continues to grow more and more. up to now, there are 130 anaesthesia guidelines for rare diseases available. patientenbefragung patientensicherheitskarte 23.01.2017 published on 23 january 2017 created on 23 january 2017 parent category: homepage email -- und wie geht es ihnen? die bisherigen schwerpunkte von orphananesthesia liegen in der erstellung von handlungsempfehlungen „durch ärzte für ärzte“. aber wie ergeht es patienten und deren angehörigen bei narkosen? wir glauben, dass wir die versorgung bei seltenen erkrankungen nochmals wesentlich verbessern können, wenn wir mehr über ihre persönlichen erfahrungen lernen. wir haben unter der adresse: https://www.soscisurvey.de/patientsafetycard-dgai eine befragung von ca. 5-10 minuten dauer vorbereitet, die hierzu klarheit schaffen wird. dabei richtet sich der fragebogen auch an betroffene, die bislang keine narkose erhalten mussten. wir danken bereits jetzt für ihre teilnahme an unserer befragung und freuen uns über ihre kritik und anregungen. bitte kontaktieren sie uns unter: this email address is being protected from spambots. you need javascript enabled to view it. . weitere informationen unter: patienteninfoschreiben new guidelines - october 2016 26.10.2016 published on 26 october 2016 created on 26 october 2016 parent category: homepage email -- we would like to inform you that the following anaesthesia guidelines have been published online recently: costello syndrome arrhythmogenic right ventricular dysplasia dermatomyositis neuromyelitis optica spectrum disorder beckers' disease conjoined twins glutaric acidemia type 1 new: orphananesthesia app online 21.09.2016 published on 21 september 2016 created on 21 september 2016 parent category: homepage email -- we would like to inform you that our new orphananesthesia app is online now. the app can be accessed at: http://app.orphananesthesia.eu/ . we would like to thank draeger for their kind support. the free-of-charge mobile application is available for ios, android and windows. our anaesthesia recommendations for rare diseases are therefore even easier accessible and easier to handle for physicians worldwide. new guidelines - august 2016 25.08.2016 published on 25 august 2016 created on 25 august 2016 parent category: homepage email -- the following guidelines have just been published online: eisenmenger's syndrome segawa's dystonia biotinidase deficiency escobar syndrome so far, there are 102 anaesthesiological guidelines available online. new recommendations - july 2016 26.07.2016 published on 26 july 2016 created on 26 july 2016 parent category: homepage email -- we would like to inform you that the following anaesthesiological recommendations have been published in the past few weeks: osteopetrosis friedreich’s ataxia neuronal ceroid lipofuscinosis maroteaux lamy syndrome timothy syndrome autism spectrum disorder new: patient safety card for rare diseases 21.04.2016 published on 21 april 2016 created on 21 april 2016 parent category: homepage email -- starting from april 2016, we offer a new "patient safety card" for all hospitals, patients and support groups dealing with rare diseases. patients or doctors can fill-in the specific name of the rare disease. the card is made to alert the anesthesiologist to problems that might occured during anesthesia of a patient with a rare disease. the card should be given to the anesthesiologist before anesthesia. it should be carried by the holder in case of emergency surgery. the anesthesiologist will be able to get informed of our orphananesthesia recommendations before anesthesia. the patient safety card is editable and ready-to print. it can be downloaded at: patient safety card new recommendations - march 2016 17.03.2016 published on 17 march 2016 created on 17 march 2016 parent category: homepage email -- there are some new anaesthesia recommendations for rare diseases available: pantothenate kinase-associated neurodegeneration bronchopulmonary dysplasia pompe disease 22q11.2 deletion syndrome proteus syndrome new guidelines for rare diseases - november 2015 25.11.2015 published on 25 november 2015 created on 25 november 2015 parent category: homepage email -- we are pleased to inform you that some new anaesthesia guidelines have been published online: paroxysmal nocturnal haemogloburina treacher collins syndrome sturge-weber syndrome stüve-wiedermann syndrome tracheal agenesis familial dysautonomia article in pediatric anesthesia / issue october 2015 09.09.2015 published on 09 september 2015 created on 09 september 2015 parent category: homepage email -- an article promoting orphananesthesia has just been published in pediatric anesthesia (pediatric anesthesia 25, 2015, 967). please find the article attached. pan_orphananesthesia_2015 orphan anesthesia: an initiative of the scientific working group of pediatric anesthesia of the german society of anesthesiology new guidelines for rare diseases 27.08.2015 published on 27 august 2015 created on 27 august 2015 parent category: homepage email -- we are glad to inform you that 3 new guidelines have just been added to our website: kabuki syndrome systemic scleroris rett syndrome here you will find a list of all guidelines that have been published so far. the orphananesthesia team would like to thank all participators for their efforts. please do not hesitate to contact us if you would like to submit a guideline, participate as reviewer or just suggest a rare disease which might be interesting for orphananesthesia. thank you. support our fundraising activities 02.07.2015 published on 02 july 2015 created on 02 july 2015 parent category: homepage email -- help us improve the safety of patients suffering from rare diseases! our target is the publication of anaesthesia recommendations for patients suffering from rare diseases - with the aim of improving the safety of patients. when it comes to the manageme

URL analysis for orphananesthesia.eu

https://www.orphananesthesia.eu/en/team.html
https://www.orphananesthesia.eu/en/links/other-projects.html
https://www.orphananesthesia.eu/en/196-new-anaesthesia-guidelines.html?tmpl=component&print=1&layout=default&page=
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http://www.orphananesthesia.eu/en/rare-diseases/published-guidelines/cat_view/61-rare-diseases/60-published-guidelines/109-myasthenia-gravis.html
https://www.orphananesthesia.eu/en/190-congenital-central-hypoventilation-syndrome-guideline-available.html?tmpl=component&print=1&layout=default&page=
http://www.orphananesthesia.eu/en/rare-diseases/published-guidelines/cat_view/61-rare-diseases/60-published-guidelines/201-miller-dieker-syndrome.html
http://www.orphananesthesia.eu/en/rare-diseases/published-guidelines/cat_view/61-rare-diseases/60-published-guidelines/176-dermatomyositis.html
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https://www.orphananesthesia.eu/en/193-relaunch-of-our-website.html?tmpl=component&print=1&layout=default&page=
http://www.orphananesthesia.eu/en/rare-diseases/published-guidelines/cat_view/61-rare-diseases/60-published-guidelines/168-autism-spectrum-disorder.html
https://www.orphananesthesia.eu/en/204-article-in-pediatric-anesthesia-issue-october-2015.html?tmpl=component&print=1&layout=default&page=
http://www.orphananesthesia.eu/en/rare-diseases/published-guidelines/cat_view/61-rare-diseases/60-published-guidelines/132-liddle-s-syndrome.html
http://www.orphananesthesia.eu/en/rare-diseases/published-guidelines/cat_view/61-rare-diseases/60-published-guidelines/142-kabuki-syndrome.html
https://www.orphananesthesia.eu/en/177-editorial.html?tmpl=component&print=1&layout=default&page=

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